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Looking for up to date official guidance and advice about COVID-19 in relation to rare diseases?  Or for details of the plans to ease guidance for over 2 million shielding? Visit our COVID-19 hub.

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Cambridge Rare Disease Network - Cambridge Rare Disease Network 1

境外永久网站

You can watch the talks and panels, view the hackathon pitchs and photo gallery from the day

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Download the Summit19 hackathon report

境外永久网站

境外永久网站

境外永久网站

Cambridge Rare Disease Network (CRDN) is a charity building a vibrant community to address the unmet needs of those living with rare conditions, their families and the professionals who work with them.  Our vision is for a united regional voice underpinning the development of services and treatments. 

Medical research and drug development have transformed the lives of people living with diseases that were formerly untreatable. Our challenge is to address the 95% of rare conditions which still have no treatment and inadequate care pathways. 

We deliver world class events and activities that put rare diseases in the spotlight to stimulate curiosity and educate the public and professionals alike. This knowledge builds confidence and empowers people to collaborate and be innovative to address these unmet therapeutic and care needs. 

We support those living with rare conditions in our community to be at the heart of these events and to be part of this wider network, sharing their expertise and becoming leaders of change.

境外永久网站

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Meet the CRDN team
Supporting CRDN

camraredisease

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Lockdown activity bundles for our #uniquefeet #co ios加速器
Welcome to our CRDN July 2023 e-news - Check out Welcome to our CRDN July 2023 e-news - Check out our newsletter packed full of #raredisease news, updates, reflections and events. Exciting update about #RAREfest20. the #ONHelix20 conference and our new #UniqueFeet Impact Report http://mailchi.mp/zlfjdw.wcbzw.com/crdn-newsletter-july_2023
We know that parents of children living with #rare We know that parents of children living with #rarediseases are superhuman, we see it every day. This @NewYorkTimesUSA article shares 4 incredible stories of families. in desperation, becoming the experts in their child's disease to seek out new treatments http://www.nytimes.com/2023/07/07/health/rare-diseases.html @nytimes #raredisease #drugs #treatment #pharma #drugdevelopmemnt #parentpower #patientsaspartners
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ios加速器Cambridge Rare Disease Network旋风加速器APP·
1 Aug

We’re absolutely delighted to have received an £8250 grant from @TNLComFund to support our work with #Cambrigeshire families affected by rare conditions!! Our local community is stronger than ever & thriving!! Msg us for info to join our activity grp & support network #ThankYou

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旋风加速器app官网Cambridge Rare Disease Network@camraredisease·
31 Jul

Super impressed with our #uniquefeet kids group’s engineering skills!! They’ve been building their @kiwico_inc #STEAM activity kits as part of their #CRDN activity bundles funded by @Cambridge_CF. So much fun!!! #stillshielding #raredisease

Reply on Twitter 1289183700920356864Retweet on Twitter 12891837009203568641Like on Twitter 12891837009203568643Twitter 1289183700920356864
Retweet on TwitterCambridge Rare Disease Network Retweeted
CambridgeBRCNIHR Cambridge Biomedical Research Centre@CambridgeBRC·
30 Jul

Our @CUH_NHS is featuring on @BBCLookEast today, they will be showing how it is moving on from the peak of #COVID19. You can follow the live coverage below.
@NIHRCRNEastern @CamBioCampus http://twitter.com/BBCLookEast/status/1288718028348301312

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境外永久网站

Cambridge Rare Disease Network - Cambridge Rare Disease Network 4
Cambridge Rare Disease Network - Cambridge Rare Disease Network 5
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Cambridge Rare Disease Network - Cambridge Rare Disease Network 8
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Cambridge Rare Disease Network - Cambridge Rare Disease Network 10
Cambridge Rare Disease Network - Cambridge Rare Disease Network 11
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Cambridge Rare Disease Network - Cambridge Rare Disease Network 14
Cambridge Rare Disease Network - Cambridge Rare Disease Network 15

境外永久网站

Cambridge Rare Disease Network - Cambridge Rare Disease Network 16
Cambridge Rare Disease Network - Cambridge Rare Disease Network 17
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Cambridge Rare Disease Network - Cambridge Rare Disease Network 19
Cambridge Rare Disease Network - Cambridge Rare Disease Network 20

境外永久网站

Cambridge Rare Disease Network - Cambridge Rare Disease Network 21
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Cambridge Rare Disease Network - Cambridge Rare Disease Network 23
Cambridge Rare Disease Network - Cambridge Rare Disease Network 24
Cambridge Rare Disease Network - Cambridge Rare Disease Network 25
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境外永久网站

Cambridge Rare Disease Network - Cambridge Rare Disease Network 27
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Cambridge Rare Disease Network - Cambridge Rare Disease Network 29
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Cambridge Rare Disease Network - Cambridge Rare Disease Network 31

If we all got involved, imagine the difference we could make? Don’t just follow us, interact with us and join our thriving rare disease community! There’s lots of ways right here to begin your journey with us…

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